Not a good week

I think I've got to the point where I might need to start the steroids. My body feels like it has broken. I have an incredibly painful right shoulder which I can't lie on, coupled with a painful lower back where my pelvis has tipped creating a stronger curve than should be in my lower back and for this I can't lie on my front... I just can't sleep on my side or my back because of getting a painful neck in the night. My gorgeous three year old suggested I could have a sleep over in her room and sit upright all night!
She isn't being very sweet when I say I can't play particular games with her because I hurt and she asks if I want to hold her hand and she will help me get to where ever she's taking me!

My hands are incredibly and increasingly stiff and painful, my knees are hot and my feet and hips hurt.

This is the tough bit... The bit where you haven't got the excitement of pregnancy to keep you focused and you can't take the medication that helps. It makes me wonder just how much the anti TNF drug Enbrel is helping... Or not...

1 month to go until we can start trying.


  1. Hey, I'm sorry to hear you're in pain. I've had an awful couple of weeks pain wise.Functioning was hard.Good news as I'm in the process of getting a biologic.

  2. I recently found your blog and have been reading it as I have rheumatoid arthritis and am trying to get pregnant with my first baby. For my own piece of mind I went off methotrexate and plaquenil for six months prior to trying but had to supplement with steroids for a period due to the pain. I have had a rough week as well and go to my rheumatologist next week. I'm scared he is going to want me back on meds but I really want to be off of everything for my baby. Thank you for your posts and helping me visualize the long term goals to help me deal with the day to day and waiting. Best of luck on round 2!!!

  3. Hi both, sorry for the delay in replying. I couldn't post your comments for ages! How are things going for you both now?