Well it seems that today was the day I finally broke down and cried about all of this. I got home from work and cried and cried and cried. I think that the pressure of the worsening disease activity, increasing disability, the equipment arriving tomorrow, trying to conceive, trying to keep up normal appearances with everyone especially at work has just got the better of me.
I think this has been a bit of a wake up call and time to give myself a break. I'm not sure what that's going to look like yet so if anyone has any ideas for me to try then please shout!