Am I seeing things?

Actually no, and that's the problem.  Over the last few months I have noticed that my eye sight in the afternoons and evenings is getting worse.  My eyes seem blurry and hazy as the day goes on and I struggle to look at something close and then immediately focus on something far away.  It usually does focus eventually but sometimes it doesn't.  I seem to end up staring at the clock for a good few seconds to read the time rather than the cursory glance.

I mentioned all of this to my consultant and she has referred me to the ophthalmology department to investigate Uveitis.  Uveitis can be linked to JIA and is a serious problem as it can lead to blindness.  At the moment I can not contemplate losing my sight and am trying not to think about this as a possibility right now. Treatment for it seems to be steroids, Methotrexate and Anti TNFs.  I wonder whether the Methotrexate and Anti TNFs were keeping these symptoms at bay and when I came off them, the vision problems have become noticeable.  

I am meant to be going out to dinner at someone's house tonight with my husband, but honestly it's the last thing I want to do.  I'm flaring and feel like I've been run over by a bus.  I don't know what the best thing to do is...the friend I am going to is not someone I know very well and she doesn't know much about or understand how I am affected by JIA so I don't feel as though I can pull out of going for dinner.  On the other hand, I know that I need to just go to bed, or in a hot bath, or lie on the sofa under a duvet, with some painkillers, hot wax bath, heat packs and ice packs....but because I don't want to make a fuss, I'm going for dinner...please send pain-free vibes my direction!


  1. Did you manage to go??

    I been having problem with my eyes, exactly as you said, i took myself to opticians as i was worried about the hydroxychloroquine.. was checked out and it was i needed a stronger prescription.. Hope things are ok for you..

  2. Hi Tracy, thanks for your message. Yes we did go and had a good time. Distraction really is a good way of trying to cope with the pain. I need to remember this!

    I am glad that your eyes turned out to be ok. I saw the optician and from that point of view, my eyes are fine. I'm just waiting for the referral to come through from the hospital.