Operation Up The Duff
Pregnancy, autoimmune arthritis and beyond...
27.2.17
33 weeks and struggling
I am trying to think through what I can get organised now in order to make things easier once the baby is here....ideas so far....
1. Somewhere for the baby to sleep upstairs and downstairs so that I avoid the stairs in the day
2. A changing table downstairs and upstairs for the same reason...both stocked with clothes, wipes, nappies etc
3. Enough muslins around the house that I don't have to move unnecessarily
4. Cooking for the freezer now so that I have meals I can just defrost and cook rather than having to prepare anything
5. Easy clothes for me to dress the baby in - nothing with fiddly buttons
6. Sling to carry the baby in to reduce the stress on my arms (good sling makes - Manduca, Ergo, Close parent caboo stretchy, Moby......all of these have a wide base for the baby to sit comfortably in. Avoid ones with a narrow base where the baby has their legs just hanging down. The best position for the baby's hips is where their legs and bottom are in a froggy position like an M)
7. Setting up various feeding stations around the house - muslins, bottles of water for me, phone charger (!) snacks and the cushions I will need to support the baby and I comfortably
8. Activities for my older child to help themselves to - all the little activity packs I have made require minimal movement from me. Most of them are craft that can be done sitting on the sofa with me or at the kitchen table
9. A thermos flask or insulated cup for hot drinks
10. Husband prepped and ready to make lunches for all of us the night before and put in the fridge to help with the amount of getting ready in the morning
Anyone got any more good ideas?
13.2.17
31 weeks
So much time has passed!
I've got a bigger bump, I am more breathless and tired now but other than a week of being very close to premature labour, nothing much has changed.
I had a week of pretty much every premature labour sign and symptom going and eventually was monitored in the assessment unit by which point everything settled down!
5.1.17
26 weeks tomorrow
I've been getting terrible back pain lately and chiropractic doesn't seem to be helping so today I tried osteopathy. The man I saw comes very highly recommended so I am hoping it will really help.
The baby is moving a lot and wriggles around. My 4 year old enjoys talking to the baby and introduces herself as the baby's big sister. It is so sweet.
I saw the obstetrician this week and he has said that I have got to rest and if this involves childcare for my daughter then so be it otherwise he's concerned I am going to need respite care in hospital.
I've been getting less contractions which is much more comfortable but feel completely exhausted.
The baby's room is pretty much sorted with the changing table and cot set up. I'm keen to try cloth nappies this time so have borrowed lots.
3.12.16
21 weeks and 1 day
We had the 20 week scan last week and all was reported to be fine with the baby. We asked not to be told the sex of the baby but instead we asked for the sonographer to write down what we were having in a sealed envelope.... It's been sat in our kitchen for just under a week and no one has cracked yet!
The baby is kicking lots, particularly as I'm going to sleep at night and mid afternoon. I can't wait to meet him or her. We thought we had at least one name sorted until my cousin named their newborn that name! It's not particularly common so well couldn't believe it!
I feel unwell with a flare pretty much all the time now and spending part of the day in bed dozing. Fortunately my first child is used to this and will climb in with me, cuddle up and now watches a film. This is a part of my parenting that doesn't sit well with my ideals. At other times I restrict viewing and I'd rather she didn't watch too much... But I have to weigh this up with my health, that I have no help with looking after her and our overall wellbeing as a family. She definitely doesn't complain at being allowed to watch something, I get some very much needed rest and our relationship stays positive.
At the moment I am not taking any medication other than paracetamol and codeine if I really need it.
5.11.16
17 weeks
Yesterday at 17+0 I felt the baby roll over! It was the funniest feeling and I don't remember feeling that sensation with my first baby. I'm sitting here feeling little kicks now and it is just lovely. I am looking forward to the bigger kicks this time as it's so magical.
My eldest likes to cuddle and kiss my bump. She's been choosing some books of hers to read to the baby when he or she arrives.
I keep calling the baby a he and I'm certain he or she is a boy...we mostly have decided on a boy's name or two but are stuck for girls names.
The hyperemesis seems to have subsided now thank goodness. It was awful. The contractions I'm getting are still strong and relatively frequent during the day.
2.11.16
30.10.16
16+2 Joints have given up
Oh I am in so much pain. Last night I got no sleep at all because both wrists and my right knee were excruciatingly painful. I'm tired - tired recovering from hyperemesis, tired from growing a baby, tired because of flaring joints and tired from looking after my 3 year old. It is so hard to keep going physically. My blue badge needs renewing and I've been asked to come to an assessment. I went to one last time and it was such an inaccurate way of deciding if someone needed a badge or not. I dread not being given another one. To me it's the difference between being able to go out or not. I need to have the certainty that I will be able to park near to where I am going. If I don't have that I'm worried I will become isolated and not be able to go out. Life is a struggle enough with joint pain and fatigue let alone having the badge refused.
28.10.16
16 weeks
Time really does seem to fly by when you already have a child to look after! How am I already 16 weeks?!
The sickness is abating and I think I am probably back to normal morning sickness levels now rather than HG. This is such a huge relief and wonderful to feel more normal. I was bed bound pretty much for the first 3 months of pregnancy and yesterday, by comparison, I had my haircut and went with my 3 year old to the beach.
No kicking yet but feeling what I think are some movements but it is very hard to tell. I'm still not in maternity jeans (I was by 9 weeks last time!) and I'm sure the bump is smaller this time. I don't suppose I've put on much weight due to the HG which doesn't help.
My joints are sore and I feel tired and like they are about to flare. I had a consultant appointment last week and the new advice is that you are able to stay on the Anti TNFs until about 15 weeks pregnant. I was told this too late though! I think the advice must be very very new. I suspect that given the option I would have come off them anyway to ensure no medication was in my system for pregnancy. I feel like I am verging on needing to go onto a course of steroids though soon unfortunately. I've had so many this year already!
8.10.16
12+4 and the scan
12+0 turned into 12+4 weeks during the scan so that was nice to be fast forwarded slightly!
The HG is still bad but I have been trying to take less ondansetron due to its side effects.
The contractions I had last pregnancy have also started up.
3.10.16
11 weeks
I am absolutely certain I can feel flutters! All week they have increased in frequency of them happening. It is so good to have a reminder of why I'm going through this awful HG.
25.9.16
10 weeks and 5 days
I've had to have about a months gap in posting an update on my blog as I have been very unwell with Hyperemesis Gravidarum.
HG is a severe and can be life threatening illness of pregnancy. I have spent nearly 2 months in bed and on anti emetic medication and have had one hospital admission for 3 litres of fluid and IV anti emetics.
Whilst I was in hospital I was given a scan to check that there was only one baby and that it was in the right place. The baby was very sweet with little skinny legs. I am looking forward to seeing him or her on the next scan in a weeks time.
More information here about HG
https://www.pregnancysicknesssupport.org.uk/
25.8.16
6 weeks 2 days
The nausea and tiredness this time around is far far worse than last time. I am almost crippled at points in the day where all I can do is get into bed and sleep...which is very difficult with a 3 year old around.
I can feel the top of my uterus about 3 fingers width above my pubic bone. I have no idea why it pops up early in me.
21.8.16
5 weeks 5 days
I am so nauseous. It is never ending... 24 hours nausea. Everything tastes different too... Mints and lemon don't taste right so they aren't helping much. Anything salty seems to help so thank goodness for crisps! I've been listening to the nevasic cd I have and that does seem to help too. It's 1.15pm and I've had to get back into bed and put my Pjs on as I feel so awful. Good job it's the weekend. I'm dreading getting through this week though.
18.8.16
5 weeks 2 days
I've just had the HCG levels back for my two tests.
4+6 days 4716
5+1 days 10626
Such great news! Everything is reassuring and progressing well.
16.8.16
5 weeks today and so nauseous
It's 4.40am and I've been awake since 2.10am feeling dizzy, nauseous and needing the toilet! Obviously I went to the loo....for the millionth time today and I've had something to eat. I've been listening to a nevasic cd to try and combat the nausea but I just can't get back to sleep because of it.
12.8.16
How am I going to hide this pregnancy for the next 8 weeks?
I look convincingly pregnant to an outsider.... It's just the progesterone levels making it appear that I have a full on bump but even my 3 year old commented.... If it is like this at 4 weeks and 3 days what is it going to be like at 12 weeks!
8.8.16
I am pregnant! I really am!
No false alarm this time! I felt very sick yesterday evening so I did a test this morning, left it in my bedside table and went to have a shower. When I opened the drawer in semi darkness after my shower I had to do a double take as I really hadn't expected it to be positive. I've been off the medication for 6 months now and we messed up the first two cycles of trying by not actually doing the deed at the right time to coincide with ovulation. This month we only did it once.
I'm on a high dose of steroids at the moment for a different medical issue and this morning my hands were really stiff and painful. Surely they ought to be doing really well!
This afternoon I've been having to lie in bed as I am so exhausted so I have put the time to good use and am listening to some very relaxing music.
4.6.16
Trying again..
Bother! I wasn't pregnant after all... Why do bodies play tricks with you?! After a ridiculously long cycle and seriously convincing pregnancy symptoms, I'm not pregnant this month. I do remember this happening the cycle before I fell pregnant the first time.
My consultant's secretary phoned in the week to say that my consultant wants me to go in for a methotrexate blood test that will find out if I have any methotrexate left in my system. She's taken so long to organise this that I'm about 4 months post last methotrexate dose but I thought I'd ought to double check it really is out of my system now.
My joints have been behaving themselves off medication incredibly well. I started flaring badly last night and was in a lot of pain. Today isn't brilliant either but it did make me realise how well I'd been coping. Long may it continue!
19.5.16
I think I'm pregnant...
I have got strong cramps, feel sick and tired... I'll be very surprised if I'm not. My hands are very stiff in the morning now but on their whole I'm managing better without medication this time compared to my last pregnancy.
11.4.16
Not a good week
I think I've got to the point where I might need to start the steroids. My body feels like it has broken. I have an incredibly painful right shoulder which I can't lie on, coupled with a painful lower back where my pelvis has tipped creating a stronger curve than should be in my lower back and for this I can't lie on my front... I just can't sleep on my side or my back because of getting a painful neck in the night. My gorgeous three year old suggested I could have a sleep over in her room and sit upright all night!
She isn't being very sweet when I say I can't play particular games with her because I hurt and she asks if I want to hold her hand and she will help me get to where ever she's taking me!
My hands are incredibly and increasingly stiff and painful, my knees are hot and my feet and hips hurt.
This is the tough bit... The bit where you haven't got the excitement of pregnancy to keep you focused and you can't take the medication that helps. It makes me wonder just how much the anti TNF drug Enbrel is helping... Or not...
1 month to go until we can start trying.
7.4.16
A better day
I'm surprised at actually how well I am feeling having stopped taking Methotrexate. I'm still taking Enbrel (which I'd also stopped in my last pregnancy at the same time as Mtx) as I've been told to keep taking it until I'm pregnant. I am going to stop it once we start trying though for my own peace of mind. I have heard of people taking Enbrel throughout pregnancy but I just don't think I could do that. I've barely taken codeine, I've had no anti inflammatories for about a year and I am taking paracetamol before I go to bed probably 3/4 nights out of 7 in a week but at no other time. My joints in my hands are very stiff and fat feeling. Things ache and hurt but I'm coping.
5.4.16
Keeping on going...
Today is a hard day. My husband has had to take the day off work to look after our daughter and I'm in bed feeling pretty terrible. My whole body hurts so badly and I can hardly think through the fatigue and pain.
I was asked on a previous post why I'd been advised to be off the methotrexate for 3 months rather than 6 months as per usual. My consultant said that the new guidelines are to be off it for 3 months which is a much better time frame for me!!
22.3.16
The phone call I had been waiting for...
I had the phone call from my Rheumatology nurse to say that the new biologic drug I was due to try next has come through and I could start it. However I had to tell her about wanting to try for a second baby and please could she sort the blood test paperwork to check for the levels of Methotrexate in my system instead!
One month down... Two to go
My joints aren't doing as badly as I would have expected them to. It's not easy but I'm pottering along ok.
16.2.16
I'm terrified....
I'm terrified at the prospect of being in uncontrollable pain for the foreseeable future without being able to take anything more than paracetamol.
I'm terrified that my wonderful relationship with my gorgeous daughter will alter in a negative way and be irreparable.
I'm terrified I won't be able to cope with being pregnant, having a new born, baby, toddler whilst also looking after my older child.
But I would love to have another baby...
15.2.16
Round 2
When I wrote my final closing post for the blog back in December 2012, I didn't think I'd be considering doing this all over again.
Tonight my husband and I have decided that I will come off the Methotrexate and Enbrel I have been taking and in 3 months start trying for a second baby.
Despite feeling excited at the prospect of having another baby, I am scared. Already, whilst still being on the medication, I am in such pain and suffering a great deal of fatigue... The thought of what it will be like once I am on no medication at all and unable to take more than paracetamol is almost too much to bear.
It also worries me how I will manage being pregnant and then having a newborn and a preschooler without family close by to help.
What am I letting myself in for?
25.12.12
And here the blog ends....
On the 20th December I gave birth to a beautiful daughter. What a precious gift. We are delighted and in awe of God's kindness. He has sustained us through our journey through illness, miscarriage, possibility of a premature baby and now birth. What an amazing Father we have.
Thank you for sharing in our journey.
Over and out x
19.12.12
37+6
I still here and still pregnant.... I keep getting pains on and off but it seems that everything has slowed down. I am seeing the consultant later so hopefully he will be able to give me some insight into how long he thinks it will be now. My joints are flaring badly and I'm in a lot of pain with them. I can't wait to meet our baby!
17.12.12
Contractions 3 minutes apart....
Action stations!!!! That is until they stopped again!
I had contractions roughly 3 minutes apart lasting for around a minute for about an hour and a half yesterday evening. Then my brother arrived to stay the night and obviously the shock of thinking he might end up delivering the baby was enough to make them stop!
I've been getting what I think is a bloody show and the typical 'clear out' of the intestines!! Nice!
I've been very uncomfortable with period type pain for the last few days and I feel a bit odd. I don't really want to leave the house which is strange. I'm 37+4 today and I've started getting period type pains back again this morning. Is this it?..... Exciting!
15.12.12
Full term plus 2
I made it! Unbelievably! After the roller coaster journey we've been on it is such a relief to no longer be having a premature baby. I am so grateful.
At 36+6 I saw my consultant who said that the baby's head was only 1/5th palpable and that he might see me later that night or the next day as he thought I'd be going into labour sooner than later... I'm still not in labour but I am I hospital as there were concerns about my blood pressure. I have spent all day in hospital being checked and there was talk of inducing me tonight if the blood test results came back showing pre eclampsia. Fortunately they didn't but they still wanted to keep me in to be monitored. I'm having my blood pressure taken every four hours.
Being on an antenatal ward is always quite eventful. I am surrounded by people would have been induced and are in labour. The girl opposite has just been whisked off to delivery as she was needing to push and it sounds like the lady in the corner isn't far off!!
I'm getting lots of sharp pains in my pelvis and tightenings but trying to relax through them. I'd love some sleep but it's so hot on the ward lights are on and it's obviously noisy, it's hard to get any sleep. I'm hoping to get home tomorrow and sleep all day!
10.12.12
36+4
Eek only a couple of days until I am full term! How did that happen? Where is our very premature baby?! Putting on weight and snug inside!
My Grandad has just said that he thinks that I will have the baby this week at 37 or 37+1. I hope he's right because I really would very much like to meet our baby now.
We have come up with two boy names and one girl name. So hopefully one will suit the baby!! My three year old god children are guessing that it's a girl. My best friend L thinks it's a boy. We're just not sure either way!!!
1.12.12
35+2
Just under two weeks until I am term and just under five weeks until my due date!
I am getting much stronger and more intense tightenings. It is very difficult to get comfortable when they are happening. Actually it is so hard to get comfortable anyway as most of the time I have little heels stuck under my ribs! Sitting on the soda to knit just isn't possible which is a big shame!
19.11.12
33+4 and George's due date (16.11.12)
Last week the consultant wanted to put me on a monitor to just check that everything was okay as I'd felt the baby move less. Turns out all was absolutely fine.
I am getting very excited about nearing our little baby's due date. It's only 6+2 weeks away and full term is only 3+2 weeks away!!! We've packed the bags and have been practising the hypnobirthing techniques we learned in our classes. I've been getting ever so uncomfortable and can't sit on the sofa, lie in bed, or in the car for long before I get little feet or a squishy bottom in my ribs. I'm getting up once or twice a night to go to the loo and really not sleeping very well but can't wait for our baby to arrive.
The nursery is all finished and I love just sitting in it, listening to relaxing music, especially The Seal Lullaby (Eric Whitacre) which reminds me of both our babies. I've just ironed three last white newborn sleepsuits and about to put them away in the drawers in the nursery. Oh I could spend all day in there pottering around and reorganising things!
7.11.12
Comedy moments
I went to mock head butt the wardrobe door during a light hearted conversation with my husband but I ended up rebounding violently off the wardrobe door... The bump got in the way!
Tonight I decided to draw a face on the bump to email this my Grandad to make him laugh as he's not very well at the moment.
5.11.12
31+4 and first day of maternity leave!
1.11.12
31 weeks
18.10.12
29 weeks today
Baby's Playlist
Well we gave the baby a concert tonight and played lots of different types of music and saw which ones it moved about to the most.
We think that the favourites were Mc Hammer, Don't touch this... Elton John, Tiny Dancer, the BBC cricket song and the Charlie Brown medley! Beethovens 5th, Mozart and the Beatles weren't so popular!!
16.10.12
28+5
It's 3am and I've been awake for a while feeling quite stressed. I think it's a combination of work, the thought of labour, being high risk, really uncomfortable and very cold. My husband has just got up to put the heating on it's so cold!!
13.10.12
28 weeks +2 days
29.9.12
26+2 weeks! And what a week....
The bump really is getting massive now but apparently you can't tell that I'm pregnant from the back at all and people say that I haven't put on any weight other than the bump. Getting comfortable to go to sleep is not easy but we're practicing the hypnobirthing techniques every night which is good.
Today we rearranged the nursery and I am so pleased with it. I can't wait to bring home our little baby!
14.9.12
Hypnobirthing and 24+1 weeks
9.9.12
23+3 weeks
17.8.12
20 weeks+1 and the scan
We had the 20 week scan the day before yesterday and saw our dear little Bear again - oh he/she was just so sweet and I fell head over heels in love with them again! Bear was chomping on his or her hands and waving, kicking and knee-ing itself in the face (clever!). Before we went in I said to my husband that this is the only time in my life that I hope my baby is 'average' and low and behold you couldn't get more average than our baby - literally spot on the 50th percentile for everything. All the body systems look good with no obvious problems. Praise God!
The consultant sonographer who did the scan said just what a sweet looking baby we had and that if she could take one home, she'd take ours. What a lovely thing to say. I know we are biased but on the screen the baby really did look ever so sweet!
I can see the baby's kicks through my bump now which is so nice. The baby tends to kick a lot at about 8am, late afternoon, mid-way through the evening and then when I'm lying in bed about to go to sleep. I woke up in the middle of the night the other night and it was kicking at 4am.....Can I start a sleep routine already?!
12.8.12
A stitch
Ooh I have a bad stitch on one side of the ever growing bump. Google tells me it's just my uterus stretching but I feel like I've been on a long distance run without realising!!
We took up the amazing offer from Huggies in Sainsburys this week and bought three packs of nappies and got 27 normal sized packs of wipes for free! Bargain! I also got a bit excited about buying tiddly clothes and bought the baby a pack of little vests, two matching hats, a gro bag and a gorgeous knitted blanket. It all feels a bit more real now that we've started to buy the baby things and clearing out the nursery in preparation to be painted.
My joints have been flaring this week and I have a telephone appointment with my consultant next week. I'm half considering going back onto some medication which would be safe I pregnancy but I'd really rather not if I can help it.
The baby has been kicking a fair amount which has just been so lovely. I can feel the kicks from the outside now which is very exciting! I wish the baby would kick more often!!
I am 19+3 today and have the 20 week scan next week. I feel a little nervous about the scan because of all the things they are looking for but I know what ever happens, God is totally in control and will equip my husband and I to deal with what we need to.
I am busy knitting at the moment, as is my mum and granny! The baby is going to have so many lovely knitted clothes. Scrummy!
3.8.12
18 weeks and 1 day
28.7.12
On holiday with good friends
We have been mostly on holiday this week with friends, staying in a lovely Grade 2 listed house in the countryside. We have played lots of croquet, had good food and sat in the sun. I've managed to knit a fair bit more of the baby jacket I've been making.
I've been finding that despite having more energy than in the first trimester, I still need to get to bed at a decent time and sit down much more than in the first few months. I feel that the bump has got quite heavy and standing up for long isn't ideal. Walking any distance isn't great either as I feel that the baby is quite low and coupled with round ligament pain/stretching, it's all pretty uncomfortable. I've been getting Braxton Hicks contractions since very very early on and they are getting pretty wearing now. I really do feel the need to rest which is a feeling that is new to me in general life
26.7.12
17 weeks today!
21.7.12
I have been kicked in the stomach...
From the inside! Twice! I was playing the baby Eric Whitacre's The Seal Lullaby, which is further down on my blog if you want to listen, and I got kicked! Wow this is the first time I have felt the baby kick. A very strange sensation but oh so lovely.
My blood pressure is quite low so feeling fairly dizzy. Crisps are doing their bit to help :-)
We are trying to buy the baby a travel system today.
18.7.12
An email to good friends
15.7.12
A few more potential movements?
I'm 15+3 and am wondering if I can feel teeny little movements occasionally from this very active baby. My placenta is at the front so I have been told to expect not to feel much until later on but just at the edges of my uterus, I am sure there is a butterfly in there!! It's only when I really concentrate though!
13.7.12
Back in hospital
Gah! Will I ever get out of here!! At least lunch is slightly less beige and a darn sight more tasty. This time I brought in emergency ketchup to combat anything beige! And hooray, vegetables! I spotted some fruit in the dining room too so I will raid that later. There are no beds at the moment so I'm having to wait in the day room which is really not very comfortable. I'd much rather go home.
So eventually I got a bed for the afternoon and evening but I persuaded them to let me go home as there weren't really going to do anything over the weekend. As soon as I started talking about going home doctors started appearing as if by magic! I had a scan of my kidney and it looked fine which is good news. They think I've had an infection if not still have one but the antibiotics aren't working but instead are covering up what's going on when they culture my urine in the lab so I've had to have 72 hours off the antibiotics and will go back on to the ward tomorrow for some more tests. They said they will admit me if I'm not better. Honestly I'm not sure I am better but I don't feel horrendous. We've had an impromptu visit from the in laws and now my mother in law has bad food poisoning and is staying with us until she feels better. I'd like to point out here that she ate some dodgy fish in a restaurant when I was in hospital and so hadn't eaten anything at ours..... Not my fault!!!
12.7.12
It's so nice being home and 15 weeks today
I am at home but still on antibiotics. I had an appointment at the antenatal clinic yesterday and instead of my consultant, I saw the most ridiculous registrar who didn't seem to know what he was meant to be doing. He gave me some very contradictory and worrying advice about my antibiotics and I left the appointment really very cross indeed. I phoned my consultants secretary at 9am and she was lovely. As soon as I said who I had seen she groaned and knew exactly where I was coming from. She said that she would get the consultant to phone me about the appointment so hopefully I can have a phone appointment with her an not be fobbed off by this registrar.
On the huge plus side, I helped with some doctors training yesterday and got scanned for 3 hours. 3 whole hours of sheer indulgence looking at the baby on the screen. Never again will I think that scanning someone is easy! Wow these doctors were pretty hopeless at scanning and the sonographers helping them were such professionals.
The baby was ever so active and it looked incredibly sweet. I saw it swallowing which was funny to watch. Oh I fell head over heels in love with this gorgeous little baby who God has trusted us to look after. I cannot wait to meet him or her.
5.7.12
Nutritional beige lunch?
Ooh how this needs ketchup! Actually anything of any other colour! Apparently there was no fresh fruit to be had and the tiniest of salads out except I'd spotted a fly flapping around it...
I am so relieved to have heard the heartbeat. I am getting cramps in my tummy and back which are very possibly down to the kidney infection irritating everything plus my uterus stretching but it's natural, I think, to fear the worst. Praise God though that whatever happens, there is nothing out of his control.
182 days until my due date!
I'm 14 weeks today! HOORAY!
But I'm in hospital and will be until at least tomorrow. The lady who was snoring was just dreadful all night. It got louder and louder! And guess who is still asleep now?!
----
Wow the midwife just found the babies heartbeat loud and clear!
4.7.12
13+ 6 and in hospital
I have a kidney infection and they want to give me a drip of antibiotics and fluids. I'm hoping it will perk me up no end!
-------
It's now 11pm and I've just had MY IV antibiotics. The lady opposite me using snoring just so SO loudly! Even with my ipod on and my hands over my ears it is still deafening! I can hardly hear my ipod!
2.7.12
In and out of hospital
27.6.12
My official scan
I had my official hospital scan today. When I first booked it I thought that I was going to be 12 weeks today but I have been put forward again today and now have a due date of 3rd January 2013. So I'm 13 weeks tomorrow.
When the sonographer first put the scan probe on my tummy the baby was asleep and sucking its thumb! It was just gorgeous. Soon enough though the baby took its thumb out of its mouth and started moving around. We could see the bones in the hands so clearly and the baby was holding up one of its hands so we got a lot of waving from him or her!
It was a lovely scan and send everything seems to be normal which, for me being always told something is not normal with my health, was a relief to hear.
26.6.12
This is not for the faint hearted
So at some point in life until fairly recently I figured that getting pregnant would be easy... Surely? You hear all about people who got pregnant the first time they tried.
Incorrect...
I hadn't realised that I was going to have to spend 6 months off medication before we could even consider trying to fall pregnant.
I thought that I wouldn't be too bad off the medication and would get pregnant first time we tried.
Incorrect...
Off the medication is like trying to move a juggernaut along by blowing on it really hard. Fortunately it only took a few months to get pregnant with George and I fell pregnant the first month with this baby.
I was under the impression that I would go into remission when I was pregnant.
Incorrect...
So far anyway. Into remission? Into full on serious flare up certainly but remission? Remission seems as far away as the East is from the West at the moment. I came close to phoning the hospital one night and asking to be admitted as the pain was out of control. I lie in bed at night tossing and turning in agony in all my joints because any position is just so painful. Now with the added complication of being pregnant nearly in the second trimester when you are meant to only be lying on your left side... What does my left hip think to this? Yeah not happy! I have chronic bursitis in my left hip due to an accident a few years ago and to lie on it even with a memory foam mattress topper is not a long term option. When I say long term, I mean longer than 10 minutes.
But in all this, I have a loving Heavenly Father who knows exactly what is best for me and I trust Him with His perfect plans for me. Hardship is not necessarily a bad thing, it produces perseverance.
This is from the book called Romans in the Bible which explains why I have this hope that suffering is not necessarily a bad thing (chapter 5 from verse 3).
Not only so, but we can also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.
You see, at just the right time, when we were still powerless, Christ died for the ungodly. Very rarely will anyone die for a righteous man, though for a good man someone might possibly dare to die. But God demonstrates his own love for us in this: While we were still sinners, Christ died for us.
And that is the reason for my hope.
23.6.12
12+1 today
The nausea has got a bit better and I can pretty much get through the day without panicking that I'm going to be sick. I feel much better now that I've had a scan and am less worried. The tiredness is still crippling and along with flaring joints, it's hard going at the moment.
I got into work yesterday and couldn't stop crying. I don't know whether it's just hormones or whether it's the pain in my joints coupled with a massive lack of proper sleep for a while. Probably everything! I was due to be going to a friend's birthday tea this afternoon but have had to pull out of going. I just need to rest. I think I push my body to the limits and then it always backfires!
21.6.12
12 weeks tomorrow
There is definitely no sign of any kind of remission... I'd take partial remission in a few joints, in fact just in one joint, I would take anything. I am in huge amounts of pain and can't seem to get much relief at the moment. I was on the verge of phoning the hospital the other night due to the pain and doing something like that is most unlike me.
Oh this is so hard.
19.6.12
Told my work colleagues
And they were so happy! Turns out most of them had already worked it out as I look pregnant, have been so tired and sick!
17.6.12
The scan
Oh my goodness it was so worth going for the early scan. They have dated me as 11+ 2 whereas from my very early scan I should have been 10+ 4 today so that's great! Nearly a week passed in 10 minutes in the scanning room!
The baby was jumping about all over the show and wouldn't keep still for any length of time. It seems to have long legs and is just so cute! We could see the arms and legs, heart, head and stomach clearly and the sonographer said that it had a perfect heartbeat.
What a wonderful day!
We've booked a private scan
It's today...
I'm nervous as I just am not sure I could bear another loss...
13.6.12
10 weeks today
It's been a real struggle to keep my eyes open today. Wow I am exhausted! The sickness seems to have been worse today and sea bands and eating hasn't helped. The only thing that works just about is a totally bonkers CD called Morning Well which you can buy from the NCT website or Amazon. It works by rebalancing your inner ears and has got a great track record in NHS trials.
I talked to my boss last night about starting Maternity leave at the beginning of November so that I can have a very good rest whilst heavily pregnant and coping with my arthritis. He thought that was a sensible idea and asked me what I was thinking about returning to work afterwards. I wouldn't ever want to not work where I do, I love it so much! So I told him this but I also said I just wouldn't be able to say until I had had the baby as my priorities would change and with my joints it would be hard to know how I would manage work as well. I then asked about the possibility of returning after a few years, perhaps when my children are in nursery, and my boss nearly jumped out of his chair and said that the job is mine and they would very much want me back. How lovely! I was pleased as it gives me alot of reassurance that should a job be available when I am looking for one again, then I can go back. Brilliant!
10.6.12
The tin man strikes again
I have slept so badly because of a combination of needing the loo twice, feeling hungry and sick at the same time and to top it off flaring joints.
This morning is a real struggle to keep focused and positive mentally with my joints. I know that giving up isn't an option but that's how I'm feeling right now. The pain is ongoing, sickening and intense in each of my joints and there doesn't seem to be any sign of going into remission in this pregnancy... At least not yet. I can not lose hope that it won't happen but when you are faced with agonising pain day in day out whilst having to live life as normally as possible and act as of nothing is wrong, it is hard to feel the same hope as the people who flippantly remind you that there is a 75% chance of remission in pregnancy. I just want to shout 'But don't you know just how much it's hurting me right now!'.
Let's hope tomorrow is a better day.
9.6.12
Getting comfortable
I knew that my uterus had popped up in week 5 which is very early but now it really is taking over my lower stomach. I can't sleep on my front at all now and even on my side is pretty uncomfortable as if I pull my legs up it gets squished but if I lie on my back it feels uncomfortable like the skin is being stretched too much! Oh for a comfortable nights sleep.... If it's bad now it's only going to get alot worse!
8.6.12
9 weeks and 3 days
I can officially confirm that the bump is out of control and will be requiring a parking permit of its own soon. The maternity jeans are on and oh so comfy. The sickness reached its peak, hopefully, this past week and I've been feeling a bit less sick which has been a relief. I am still more than exhausted though and needing to sleep in the afternoon.
It has been loads of fun telling family about the baby.
My Granny wasn't expecting us to knock on her door as we live about 5 hours from her so the day after we arrived at my parents we went round and knocked on her door... No answer so I phoned her and she was drying her hair upstairs and didn't hear the door. I told her she needed to answer the door as there was a delivery there for her... She hadn't cottoned on by this point so the look of surprise on her face when she opened the door was brilliant! We had some birthday presents for her too so went in and gave her those. In my Granny's birthday card we wrote love from us and Baby. She was absolutely thrilled and was so excited. I've never seen her look so overjoyed before! She kept saying that she was just speechless with excitement as she hadn't expected us to come all the way to visit her and also tell her about the baby too! I went round to hers the day after and she brought out a huge package and said she had something for me that she'd been working on for the last two or three years.... I opened it and she had knitted lots of beautiful cardigans, booties, mittens, hats and gorgeous 1950s leggings all wrapped carefully in tissue paper! Oh I was so pleased. At the bottom of the package there were two absolutely beautiful patchwork quilts - one in pinks and one in blues. She said that she didn't want to get to a point where she couldn't make things for our baby so she had started early! Oh I love my Granny just so much!!! She's now knitting some bigger sized cardigans...
We met up with my mother in law and told her (we had thought my father in law would be there too but wasn't so had to phone him!). We showed her the scan photo and she thought it was a hat... Admittedly she didn't have her glasses on but she was pleased when we told her it was her first grandchild! We then phoned my father in law and told him he'd missed out on a photo... My husband described the scan photo down the phone and he was delighted with the news too! He just kept saying what excellent news it was!!
We told my grandmother in law and she was so sweet! She said that all her friends are great grandmothers and now she gets to be one too! Our baby will be her first great grandchild.
On Friday we told my sister in law much the same way we told my brother. She was very excited and wanted to know all the ins and outs. She's a doctor and gave some sensible advice about going on maternity leave as early as possible with my joints. That night we phoned my other sister in law in Australia and told her the news. She's pleased too and said she's going to start thinking of some names! Excellent, we can have a family poll!!!
So... until the 12 week scan we are not telling anyone else.... My grandad and both our extended families will have to wait.... We have decided not to tell my grandad yet as I'm not sure he will be able to keep it a secret from the rest of the family. Everyone we have told so far are sworn to secrecy!
30.5.12
Telling my family the news
Oh this was hilarious! We saw them at a wedding this past weekend so once they had got through the door and started unpacking their things I casually turned the conversation onto work and announced that I was going to take a years sabbatical from work starting in December this year... They looked at me, at each other and at me again... Then my Dad said 'You're pregnant!' They were over the moon.
We told my brother later on when he arrived. My Mum was in the room enjoying the story as it unfurled. I said to my brother that I think I might have not bought him a birthday present this year but I have already got him something for next year. He asked if it was an Austin Martin... I said no and that it was going to be a bit more of a commitment than a car... He asked if it was an animal... Hmm close! I then asked if he wanted to be an uncle for his birthday. I have never seen my brother look more speechless, gob smacked and excited in my life! He was thrilled and just couldn't believe it.
I am looking forward to telling my Granny next week for her birthday and the in laws too.
Blooming? Or just bloomin' nausea?
Hooray it's 8 weeks today for me and the baby. I've just woken up from a very long afternoon siesta and still feel exhausted.
This morning I went to get my blood tests done to check blood group and all sorts of other things that I can't remember and as I came out of the room my original lovely GP was walking along the corridor and stopped for a chat which was very nice of her. She's been off on maternity leave and only just come back. I was surprised she knew who I was... Did I really go to see her that much? Obviously did! She said that I was looking really well which made me laugh as she's the third person in two days to say just how well I am looking. The other two were work colleagues who don't know I am pregnant. One even said I was blooming! So maybe the more sick you feel in pregnancy, the better you look? They should bottle this! So I let my old GP in on the secret that I was pregnant and she was very excited. She told me that when she was pregnant she didn't get sick just very hungry. One day she accidently locked herself in her spare bedroom as the handle fell off and she ended up breaking down the door to get food!
My nausea and tiredness are definitely getting worse but hopefully they will peak soon. Only 4 weeks until the next scan. I hope that everything is alright in there. My joints have been flaring over the last week or so which has made life pretty horrible. Being pregnant this time doesn't seem to be doing much for my arthritis.
Mum pulled out all my old baby clothes from the attic last night and had fun going through them. This baby is going to have to embrace the 80s! She's found our old cot and high chair too which we can have at their house.
It's 24 degrees today and phew I am hot! George's rose is growing lots though... and the greenfly are loving it... Hmm need a plan!
23.5.12
7 weeks today!
19.5.12
This baby likes crisps..
... and wants them RIGHT NOW!
But it really doesn't want anything sweet. Chocolate tastes funny and so does Lucozade now which is very bad as it had been keeping sickness at bay.
We have a baptism to go to tomorrow so some creative dressing is in order to disguise the tiddly bump that seems to be growing at a rate of knots! I'd like to think that the intake of baby demanded food is not the cause as quite frankly I am not eating a huge amount of anything right now. My GP says don't worry but just keep drinking plenty.
17.5.12
Comedy hormonal moment
Last night I was so tired that I sat on the floor to brush my teeth after persuading my husband to not only put the toothpaste on the brush but press the button too. He then offered to brush my teeth for me so I took him up on his offer! All this was so funny that I was laughing so much I couldn't stand up by myself and then laughing turned to tears and I cried all the way through brushing my teeth! It was so funny!
Booking appointment
I had my booking appointment with the Midwife today and I feel totally overwhelmed by questions and paperwork.
Unfortunately the Midwife assumed alot and said 'Oh you don't have any significant medical history' and then crossed out a page on my form before I could set her straight! It's all sorted now but it didn't fill me with confidence that she's asked me the right things.
My lovely GP phoned me this evening just to see how I was doing. How kind! She said not to worry about not feeling like eating much but if the sickness gets to a point that I can't keep fluids down then I need to worry. She asked how my joints were too. Unfortunately I am flaring at the moment.
Lots of rest prescribed!
16.5.12
My first scan
15.5.12
Massive lack of symptoms
I phoned the Early Pregnancy Unit as I wasn't at all pro active in finding out if everything was ok before the last miscarriage. They wanted me to come up to the hospital so off I went after leaving work in an emotional panic. I was so scared as I just didn't know what was going to happen.
I saw a doctor and she is sending me for a scan tomorrow and is wondering if my high HCG levels indicate twins... I really hope that the scan shows a healthy pregnancy progressing well.
14.5.12
Today I told my boss
And he was delighted for us! He was really helpful too and said just to let him know how I am and if there is anything he can do. Glad that is over and done with!
I could barely move this morning as I felt so sick. The sickness is coming on about 4.30am and lasts until I fall asleep. I'm having to eat crackers and drink lucozade constantly.
13.5.12
6 weeks today!
I feel so pleased to have got past the date of the miscarriage and now I am 6 weeks with this pregnancy. We are calling the bump Ava for now as I really felt like it was a girl when I first found out that I was pregnant. Happy to be proved wrong or right in January 2013!
We have started taking bump photos because unbelievably already I have a small bump. My midwife friend said that she could feel the top of my uterus so things have started to pop! I am very excited. Of course I feel nervous because of what happened last time, I don't want to go through another miscarriage. I have to think positively and this is a different pregnancy.
So far I've been feeling pretty sick from early in the morning and it gets a bit better in the afternoon but the evenings aren't very nice. I was nearly sick in the shower the other day but haven't been sick yet. Lucozade is amazing though!!! I feel very tired and sometimes a bit dizzy. My boobs are massive and very painful!
We are off to play with our godchildren today in the park as it's a beautiful sunny day and feeling very warm which is a welcome change to recent weather.
* * * * * * * * * * * * * * * * * * * * * *
Just back from playing in the park with our gorgeous godchildren and we asked our two year old godson what was in my tummy and he said 'a boy'... Which is what he guessed last time given the choice! But having learned from experience now, you don't trust a two year old! My two year old god daughter told me once that I had to put her in her pyjamas for her lunchtime nap... So I believed her, much to her mum's amusement at the effort I'd gone to!
10.5.12
Nausea
If I get through today without being sick, it will be amazing. The nausea has really ramped up this morning. I have a job that I can't just go and hide in the toilets. I will just have to keep eating and hope no one notices!
9.5.12
The last time I was 5+3 weeks...
I miscarried but this time midwife friend can feel the top of my uterus! That is serious growing! Now we are really wondering about twins especially as my hcg levels seem higher than average. My hcg levels at 4+2 weeks were 849 and at 4+5 weeks they were 4002 which is really good and such a relief.
A fair amount of nausea is setting in but still mild and manageable with crackers!! Morning sickness is myth though... I'm still feeling sick when I am trying to go to sleep!!
6.5.12
5 weeks today
And I'm sat in bed, having slept for hours this evening due to extreme tiredness, and I'm eating cold cucumber slices and cheese...having tried mints and crackers... I am feeling fairly nauseous. My husband said I look pregnant already as I have a bit of a bump showing which is most likely bloating but I'm finding it uncomfortable in my jeans and skirts.
I have been having my hcg blood levels done and at 4+ 2wks it was 849 which is double the average... Twins?! Last time at 5 weeks my level was 48.
Of course I am really conscious of every cramp and back pain after the miscarriage in March and am worried it might happen again.
I've booked a midwife appointment for a couple of weeks time but I think I might bring it forward and see if I can have an early scan for reassurance.
2.5.12
Announcing the news
I told my 2 year old godson and he thinks the baby is a boy!
4 weeks 3 days
27.4.12
As I was brushing my teeth this morning something amazing happened....
A mammoth day at the hospital
1) No evidence of eye disease...hooray
2) Lots of blood tests taken to investigate the miscarriage (very unusual to investigate after one but due to my worsening joints they want to speed the process up at much as possible)
3) Blood tests for HLA-B27 to see if I have Ankylosing Spondylitis as an alternative to JIA or in addition to.
4) I am now off the Plaquenil and now am taking Azathioprine and Diclofenac. I have steroids still in case I feel I really can't cope....
The day left me exhausted and in a lot of pain for the last few days. I have had three consultant meetings all on one day (obstetrician, rheumatologist and the opthamologist) and have been bombarded with information.
21.4.12
Forget your troubles come on get happy!
I am trying to chase all my cares away today.
After only being able to get to sleep at 1am, I woke up at 4am due to the pain... So I went on Facebook to be greeted with a status update announcing a pregnancy. It's this weekend that I would have been announcing mine. It hit so hard and I felt crushed.
I had a call a few days ago from the hospital asking if I could come to an appointment this week with my rheumatologist and obstetrician. They want to see me together for an extended appointment. I really need to take this opportunity to see how best I can move forward coping with this hideous disease without significant medication. I also have an appointment in the morning to check my eyes to see if I have uveitis... I think it's going to be a full on day. This is when I wish I had someone to come with me to my appointments. Unfortunately my husband can't as he has meetings at work.
17.4.12
Please can someone send a butler round!
I'd love a cup of tea but the trouble is, is that I'm two flights of stairs away from the kettle! My joints and fatigue are dictating that I really can't manage the stairs this afternoon.... But oh how I'd love a cuppa!
I have spent alot of time playing and looking after friends children in the last two days and my body is now complaining loudly and I'm close to crying. I just would love so much to be able to do everything normally. I guess this is the trouble of having an illness that you can't see... You expect yourself to be able to do more than you can and others expect the same.
I don't like complaining or even really talking to other people about how I feel physically so I'd love to know how to get across that I can't do everything...
15.4.12
Back from a lovely week away
We had a great time, I slept lots and rested well. It was a very much needed holiday. I would highly recommend a holiday soon after a miscarriage as it gives you some focus and well deserved rest time.
We saw my parents too and my Dad was very sweet and said just how sorry they were again with tears in his eyes. It nearly started me off!
I have got a couple of family and friends events coming up over the next few months so more things to look forward to.
A close friend of mine is pregnant and has just announced it on Facebook. Fortunately I already knew but it still hit me hard reading that she had been for her scan. Of course I am so happy for her that everything seems well with her baby and pregnancy. She was so worried about miscarrying and talked to me about it. It was a hard conversation because I kept thinking at least she has the hope of her baby being okay whereas mine doesn't. She is due just before my due date. I hope that I am pregnant by then.
2.4.12
Holidays
31.3.12
Picking up the pieces and moving forward
There have been a number of really good things that have helped over the last two weeks in my physical recovery and emotional healing. We are glad that we told our closest friends of the miscarriage because they have been so supportive and lovely, not to mention the amazing number of flowers we have received! Also we bought a rose bush and buried the baby underneath which I think has been very helpful... But I think that the biggest thing that has helped was naming the baby. It moves the situation from abstract to concrete and I would say that has really helped us. We are looking into having a piece of jewellery made with George's birthday and name on it.
28.3.12
Work
25.3.12
Hideous nightmares and going back to work
My boss phoned me this evening to check I was alright for work tomorrow. He was just so kind and thoughtful. I feel very fortunate to work with such lovely and supportive colleagues. I really hope tomorrow goes well. I don't want to start crying!
23.3.12
Am I a Mum?
Our magnolia |
I can't get to know my baby.
No one will know that I am a Mum.
What identity do I have now?
Will people forget that my baby died?
Will I forget? I don't want to forget.
Will people expect me to get over this in a week?
Why did my baby die?
Is this going to happen again?
"It's so common" people say - that doesn't help
That makes me feel worse to know that others are going through this
That it's so common it might happen again.
The biggest question for me though is Am I a Mum?